Créée le 30 octobre 2017, l’association Les Fées Mellynettes met en place plusieurs actions pour venir en aide à Mellyne, à Ruillé-Froid-Fonds (Mayenne). Celle qui soufflera ses quinze bougies le 9 mai 2022 est atteinte du syndrome d’Aicardi-Goutières.
Une maladie génétique et neurologique très rare. Après l’aménagement d’une chambre adaptée, l’acquisition d’un nouveau véhicule adapté, un nouveau projet attend Aurélie et Tony Cerveux, à l’initiative de l’association.
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D’autres projets pour améliorer son quotidien ?
[actuinterview actuinterview-prenomnom="Aur%C3%A9lie%20Cerveux" actuinterview-initiales="AC" actuinterview-question="Comment%20va%20Mellyne%C2%A0%3F" actuinterview-reponse="%C3%87a%20fait%20un%20an%20qu%E2%80%99elle%20n%E2%80%99est%20plus%20stabilis%C3%A9e.%20De%20ce%20fait%2C%20son%20op%C3%A9ration%20du%20dos%20a%20%C3%A9t%C3%A9%20report%C3%A9e%20%C3%A0%20l%E2%80%99ann%C3%A9e%202023.%20Le%20projet%20v%C3%A9lo%20va%20donc%20aussi%20d%C3%A9pendre%20de%20cette%20op%C3%A9ration%2C%20en%20fonction%20du%20temps%20de%20convalescence.%0A%0ADe%20plus%2C%20il%20faut%20prendre%20en%20compte%20ses%20nouveaux%20traitements%2C%20dont%20l%E2%80%99un%20pour%20faire%20face%20%C3%A0%20des%20probl%C3%A8mes%20urologiques%2C%20et%20attendre%20que%20ses%20crises%20de%20dystonies%20(contractions%20musculaires)%20s%E2%80%99estompent.%20Elle%20a%20aussi%20eu%20la%20Covid%20il%20y%20a%20deux%20mois%2C%20mais%20aujourd%E2%80%99hui%20%C3%A7a%20va%20beaucoup%20mieux." /]
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